{"id":42622,"date":"2024-11-21T14:01:28","date_gmt":"2024-11-21T13:01:28","guid":{"rendered":"https:\/\/www.spie-automation.com\/serina-receives-donation-for-butterfly-children\/"},"modified":"2026-05-08T13:11:32","modified_gmt":"2026-05-08T11:11:32","slug":"serina-receives-donation-for-butterfly-children","status":"publish","type":"post","link":"https:\/\/www.spie-automation.com\/en\/serina-receives-donation-for-butterfly-children\/","title":{"rendered":"Serina accepts donation for butterfly children"},"content":{"rendered":"\t\t<div data-elementor-type=\"wp-post\" data-elementor-id=\"42622\" class=\"elementor elementor-42622 elementor-32815\" data-elementor-post-type=\"post\">\n\t\t\t\t<div data-particle_enable=\"false\" data-particle-mobile-disabled=\"false\" class=\"elementor-element elementor-element-12b1e1f e-flex e-con-boxed e-con e-parent\" data-id=\"12b1e1f\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t\t\t<div class=\"elementor-element elementor-element-0fcc055 elementor-widget elementor-widget-heading\" data-id=\"0fcc055\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h1 class=\"elementor-heading-title elementor-size-default\">Serina accepts donation for butterfly children<\/h1>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-73629ad elementor-widget elementor-widget-text-editor\" data-id=\"73629ad\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p><br>Sometimes it takes a personal nudge to make us realize the importance of solidarity and support. For us, it was the moving story of our colleague Stefan Berger and his daughter Serina. <\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div data-particle_enable=\"false\" data-particle-mobile-disabled=\"false\" class=\"elementor-element elementor-element-9831474 e-flex e-con-boxed e-con e-parent\" data-id=\"9831474\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t\t\t<div class=\"elementor-element elementor-element-b0a8a2a elementor-widget elementor-widget-image\" data-id=\"b0a8a2a\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t\t\t\t<figure class=\"wp-caption\">\n\t\t\t\t\t\t\t\t\t\t<img fetchpriority=\"high\" decoding=\"async\" width=\"1536\" height=\"480\" src=\"\/wp-content\/uploads\/240703_Spende_Schmetterlingskinder_Blog_Header_1920x600-1-1536x480.jpg\" class=\"attachment-1536x1536 size-1536x1536 wp-image-41545\" alt=\"Handover of a donation check for butterfly children\" srcset=\"https:\/\/www.spie-automation.com\/wp-content\/uploads\/240703_Spende_Schmetterlingskinder_Blog_Header_1920x600-1-1536x480.jpg 1536w, https:\/\/www.spie-automation.com\/wp-content\/uploads\/240703_Spende_Schmetterlingskinder_Blog_Header_1920x600-1-800x250.jpg 800w, https:\/\/www.spie-automation.com\/wp-content\/uploads\/240703_Spende_Schmetterlingskinder_Blog_Header_1920x600-1-768x240.jpg 768w, https:\/\/www.spie-automation.com\/wp-content\/uploads\/240703_Spende_Schmetterlingskinder_Blog_Header_1920x600-1.jpg 1920w\" sizes=\"(max-width: 1536px) 100vw, 1536px\" \/>\t\t\t\t\t\t\t\t\t\t\t<figcaption class=\"widget-image-caption wp-caption-text\">Fig.: Serina and her family accept the two donation checks | Rudolf Rauch, Serina Berger, Stefan Berger, Petra Berger, and Reiner Hafen (from left to right)<\/figcaption>\n\t\t\t\t\t\t\t\t\t\t<\/figure>\n\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div data-particle_enable=\"false\" data-particle-mobile-disabled=\"false\" class=\"elementor-element elementor-element-9001e27 e-flex e-con-boxed e-con e-parent\" data-id=\"9001e27\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t<div data-particle_enable=\"false\" data-particle-mobile-disabled=\"false\" class=\"elementor-element elementor-element-73d7784 e-con-full e-flex e-con e-child\" data-id=\"73d7784\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-10bd29e elementor-widget elementor-widget-text-editor\" data-id=\"10bd29e\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p><strong>Pfullendorf, November 21, 2024 &#8211; <\/strong>Serina Berger is 21 years old and lives with the intermediate form of the rare disease Epidermolysis bullosa (EB), commonly known as butterfly disease. She is passionately creative \u2013 no wonder she chose a dual study program in Graphic and Media Design in Ravensburg. &#8220;Graphic design has always been my thing,&#8221; she says. &#8220;I especially enjoy working with videos &#8211; I&#8217;m a real film fan. My goal is to work as an animation designer.&#8221; Serina&#8217;s parents describe her as a cheerful and humorous person. &#8220;And she is incredibly ambitious,&#8221; her father Stefan says proudly. He has been working for SPIE ESCAD in Pfullendorf for more than 25 years. He smiles at his next thought: &#8220;But watching movies with her is exhausting because she&#8217;s always commenting on how they were made.&#8221;       <\/p><p>Serina has accepted the disease as part of her life and takes each day as it comes: &#8220;There are ups and downs. That makes planning difficult sometimes,&#8221; the 21-year-old explains. &#8220;The most important thing is not to get too stressed. That immediately affects how I feel.&#8221; <\/p><p>Daily life with EB requires a lot of organization: Serina&#8217;s bandages are changed twice a week, which takes up to eight hours. The materials, including special silicone layers, cost the Berger family between 60,000 and 70,000 euros annually. On top of that are additional aids that, for example, reduce the risk of injury for Serina, or surgeries. The application process is tedious, burdened with bureaucracy, and costs those affected and their families a lot of time, money, and nerves.   <\/p><p><strong>Support from DEBRA Austria and Dermakids e. V.<br><\/strong>This is where the organizations DEBRA Austria and Dermakids e. V. come into play. They are indispensable partners for families like Serina&#8217;s. DEBRA Austria provides medical support, coordinates surgeries, and conducts studies to develop better treatment methods or even a cure. Finding doctors who are familiar with EB is not that easy. Once a year, Serina and her family therefore travel to a specialized clinic in Salzburg. There, her health status is checked and treatment methods are tested.     <\/p><p>The association Dermakids e. V., on the other hand, handles legal issues. The team there supports families in obtaining medication and bandaging materials and helps with disputes with health insurance companies. &#8220;Without these organizations, it would be almost impossible to manage the financial and organizational challenges,&#8221; says Stefan Berger. &#8220;A lot of what helps Serina has to be fought for first. That&#8217;s why we are very grateful that we can rely on help for this.&#8221;   <\/p><p>SPIE ESCAD supports both organizations with 750 euros each. They perform indispensable work, not only for those affected but also for their families.  For us, a truly good reason to help. <\/p><p><strong>Serina&#8217;s look into the future<br><\/strong>When asked what she wishes for her future, Serina answers: &#8220;Of course &#8211; that a cure for the disease can be found. Or better methods to alleviate the symptoms. But actually, I am happy with my life.&#8221;<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div data-particle_enable=\"false\" data-particle-mobile-disabled=\"false\" class=\"elementor-element elementor-element-2791148 e-con-full e-flex e-con e-child\" data-id=\"2791148\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-2b35dfc elementor-position-top elementor-widget elementor-widget-image-box\" data-id=\"2b35dfc\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image-box.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<div class=\"elementor-image-box-wrapper\"><figure class=\"elementor-image-box-img\"><img decoding=\"async\" width=\"1440\" height=\"600\" src=\"\/wp-content\/uploads\/Erklaerung_Krankheitsbild.jpg\" class=\"attachment-full size-full wp-image-41548\" alt=\"\" srcset=\"https:\/\/www.spie-automation.com\/wp-content\/uploads\/Erklaerung_Krankheitsbild.jpg 1440w, https:\/\/www.spie-automation.com\/wp-content\/uploads\/Erklaerung_Krankheitsbild-800x333.jpg 800w, https:\/\/www.spie-automation.com\/wp-content\/uploads\/Erklaerung_Krankheitsbild-768x320.jpg 768w\" sizes=\"(max-width: 1440px) 100vw, 1440px\" \/><\/figure><div class=\"elementor-image-box-content\"><h3 class=\"elementor-image-box-title\">What is butterfly disease?<\/h3><p class=\"elementor-image-box-description\">Epidermolysis bullosa is a genetic condition where the skin is as fragile as the wings of a butterfly. Even slight touch or friction can lead to painful blisters and wounds \u2013 not only on the outer skin but also on the mucous membranes inside the body. People with EB must invest a large part of their time in wound care, which is often costly and elaborate. Epidermolysis bullosa (EB) includes several forms that differ in severity, symptoms, and genetic cause.   <\/p><\/div><\/div>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-e34091f elementor-widget elementor-widget-image\" data-id=\"e34091f\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t\t\t\t<figure class=\"wp-caption\">\n\t\t\t\t\t\t\t\t\t\t<img decoding=\"async\" width=\"872\" height=\"500\" src=\"\/wp-content\/uploads\/DEBRA-Poster.jpg\" class=\"attachment-large size-large wp-image-41546\" alt=\"Poster campaign by DEBRA Austria from 2020\" srcset=\"https:\/\/www.spie-automation.com\/wp-content\/uploads\/DEBRA-Poster.jpg 872w, https:\/\/www.spie-automation.com\/wp-content\/uploads\/DEBRA-Poster-800x459.jpg 800w, https:\/\/www.spie-automation.com\/wp-content\/uploads\/DEBRA-Poster-768x440.jpg 768w\" sizes=\"(max-width: 872px) 100vw, 872px\" \/>\t\t\t\t\t\t\t\t\t\t\t<figcaption class=\"widget-image-caption wp-caption-text\">Fig.: Poster campaign by DEBRA Austria from 2020. \u00a9 DEBRA Austria<\/figcaption>\n\t\t\t\t\t\t\t\t\t\t<\/figure>\n\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-cc2b358 elementor-widget elementor-widget-testimonial\" data-id=\"cc2b358\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"testimonial.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-testimonial-wrapper\">\n\t\t\t\t\t\t\t<div class=\"elementor-testimonial-content\">The donation from SPIE ESCAD does a lot of good! It helps us provide medical care for butterfly children at the EB House Austria, advance important research toward alleviating and curing Epidermolysis bullosa, and be there for those affected in emergency situations whenever they need help. Thank you very much!  <\/div>\n\t\t\t\n\t\t\t\t\t\t<div class=\"elementor-testimonial-meta elementor-has-image elementor-testimonial-image-position-top\">\n\t\t\t\t<div class=\"elementor-testimonial-meta-inner\">\n\t\t\t\t\t\t\t\t\t\t\t<div class=\"elementor-testimonial-image\">\n\t\t\t\t\t\t\t<img loading=\"lazy\" decoding=\"async\" width=\"502\" height=\"502\" src=\"\/wp-content\/uploads\/213_20240306_cschedl_debra-Team_500x500.jpg\" class=\"attachment-full size-full wp-image-32825\" alt=\"\" srcset=\"https:\/\/www.spie-automation.com\/wp-content\/uploads\/213_20240306_cschedl_debra-Team_500x500.jpg 502w, https:\/\/www.spie-automation.com\/wp-content\/uploads\/213_20240306_cschedl_debra-Team_500x500-150x150.jpg 150w\" sizes=\"(max-width: 502px) 100vw, 502px\" \/>\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\n\t\t\t\t\t\t\t\t\t\t<div class=\"elementor-testimonial-details\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t<div class=\"elementor-testimonial-name\">Dr. Rainer Riedl<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<div class=\"elementor-testimonial-job\">Chairman of DEBRA Austria and father of a daughter affected by EB<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"<p>Sometimes it takes a personal nudge to make us realize the importance of solidarity and [&#8230;]<\/p>\n","protected":false},"author":1,"featured_media":41544,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"single_without_headline.php","format":"standard","meta":{"footnotes":""},"categories":[130],"tags":[],"class_list":["post-42622","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.2 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Serina accepts donation for butterfly children - SPIE AUTOMATION<\/title>\n<meta name=\"description\" content=\"SPIE ESCAD donates 750 euros each to the organizations DEBRA Austria and Dermakids e. 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